an ordinary Mum writing about her little girls journey with Rett syndrome and our family journey through life and faith alongside her.
Sunday, 1 May 2011
Just wanted to share a couple of pics I took today.The sun was shining and Seraphina was SO pleased to be out int it.
THIS is the reason I go on about Girl Power 2 cure and RSRT, this smile is what keeps me going , making people aware of Rett syndrome and in so doing praying that we will one day have a cure.I want to see my girl run and play with her sisters, I want to hear her talk SO much and say the word I never got to hear her say...Mama
and this gorgeous picture is of my four beautiful girls together.