tag:blogger.com,1999:blog-8669889792701619840.post5999439310746463058..comments2018-07-25T19:19:19.502-07:00Comments on Seraphina's World: so many mixed feelingsCarolinehttp://www.blogger.com/profile/05768108015010129927noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8669889792701619840.post-78529728257022323202008-10-07T05:20:00.000-07:002008-10-07T05:20:00.000-07:00What a lovely message from Siobhan. I can't really...What a lovely message from Siobhan. I can't really add anything helpful. I can only reiterate the fact that none of this has been your fault and you have done the very best for Seri. You are the best Mummy she could ever have chosen. xxxHazelhttps://www.blogger.com/profile/16894270282560207618noreply@blogger.comtag:blogger.com,1999:blog-8669889792701619840.post-34643208269662148372008-09-30T02:20:00.000-07:002008-09-30T02:20:00.000-07:00Oh Caroline.. I am so sorry this has hit you so ha...Oh Caroline.. I am so sorry this has hit you so hard this week.. but please please don't be so hard on yourself. I completely understand the sinking feeling before operations and doctors appointments - it still gets me, even when I just have an appointment for myself.. usually I am so nervous and stressed my blood pressure is alarmingly high (even when I am just asking for a repeat prescription..hehe). So I totally understand. I am sorry you have such mixed feelings about Seraphina's diagnosis.. but don't blame yourself for anything! You've done a fantastic job with her, and ultimately it is the love and caring for a child which will help that child reach their maximum potential, whether they have disabilities or not. God does not make everyone "perfect", firstly because our idea of perfect is skewed anyway (there are plenty of criminals and evil people who are perfectly intelligent and able bodied), and also to show us how precious and special life is. This was brought home to me by the child of a friend from church, who has some brain damage due to severe epilepsy - she couldn't walk or talk at the age of five, but was the sunshine of everyone's life who met her. You couldn't help but love her the instant you saw her, even if you didn't know she was disabled. She enriched everyone's lives around her greatly, as I am sure Seraphina does also. We all have our purpose in life, immense strength of will and a great joy for life can in fact often be found in those that society classes as the weakest. I have found children generally end up surprising their doctors by beating their diagnoses and making the absolute best out of what they have, so I am sure Seraphina will surprise them all yet. We all make the best of what we're given, ultimately, anyway.<BR/>Please don't blame yourself for not being able to keep her inside longer.. that wasn't your choice and not your fault. I used to say with Niamh, when she was tiny and we didn't know what would happen with her.. I didn't care what would happen, as long as she could be happy. And Seraphina's lovely smiles certainly make her look like a happy child.. I'd say you're doing exactly the right things with her ((hugs)). Make sure you take care of yourself too though.. find a support group of parents with differently-abled children, talk to a therapist or councellor to work through your grief and the immense stress you've been under.. and accept any help you can, so that you can rest sometimes too.<BR/>Thinking of you all, SiobhanHenwenhttps://www.blogger.com/profile/08740577914911520909noreply@blogger.com