tag:blogger.com,1999:blog-8669889792701619840.post5215939176057664110..comments2018-07-25T19:19:19.502-07:00Comments on Seraphina's World: The news from SheffieldCarolinehttp://www.blogger.com/profile/05768108015010129927noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8669889792701619840.post-80175277832492394632011-11-04T11:36:26.517-07:002011-11-04T11:36:26.517-07:00Thank you to all three of you for your kind commen...Thank you to all three of you for your kind comments.Jaz, its lovely to hear from you again and so pleased your are still reading.LuluandJessie we look forward to hearing from you.Laura Ann Dunks, I will take a look at your links, thanks :)Carolinehttps://www.blogger.com/profile/05768108015010129927noreply@blogger.comtag:blogger.com,1999:blog-8669889792701619840.post-77594692970037920562011-11-03T19:00:17.086-07:002011-11-03T19:00:17.086-07:00But even if it can't it may be able to help wi...But even if it can't it may be able to help with the IBD and autism. It is a risk in the sense that you would have to come off all immune suppression, but it may be worth finding out some information from the LDN research trust and taking it to Seraphina's doctor.<br /><br /> <br />I have also been on the Specific Carbohydrate Diet for my Crohn's since Jan 2010 although it also helps people with autism. I don't know if you have heard of that. I basically only eat the things my intestines find easy to absorb. My private doctor who I see for the ME recommended this. When I ate some fudge in an emergency my health went backwards, so I know it works.<br /> <br />http://www.scdiet.org/<br /> <br />http://www.breakingtheviciouscycle.info/ This site has the legal/illegal list.<br /> <br />I use this cooking book http://www.amazon.co.uk/Healthy-Living-Cookbook-Carbohydrate-Lactose-free/dp/159233282X/ref=sr_1_2?ie=UTF8&qid=1303775946&sr=8-2<br /> <br />There are some yahoo groups/mailing lists about the scd diet too.<br /> <br /><br />Further, if you can afford it, there is a private hospital in hertfordshire (Breakspear) that has helped me so much. The have an autism specialist there but they also treat a range of environmental illnesses, and they helped with my ME and Crohns. He saw my sister, but because my sister was already and adult she refused to do anything he recommended like diet, and there was nothing we could do.<br /><br />It is hard to guess what would happen if you took LDN in Rett syndrome because of the rarity and the lack of trials, but I do think it would be worth researching it and discussing it with doctors to see what they think. <br /><br />If you want to ask any questions, you can email me: lauradunks at googlemail dot com <br /><br />Thank you for reading. Still praying.<br /><br />Laura xxxLaura Ann Dunkshttps://www.blogger.com/profile/01514636777035215126noreply@blogger.comtag:blogger.com,1999:blog-8669889792701619840.post-41539962134659273982011-10-29T17:30:41.242-07:002011-10-29T17:30:41.242-07:00I just saw post pals on Russell Howards show, and ...I just saw post pals on Russell Howards show, and came to look at the site. I notices Seraphina's site as she's just a couple of months younger than my little girl - then I saw her face and that gorgeous smile! She's beautiful and sounds like a little trooper. I read your blog with a tear in my eye that she's having such a tough time right now. If its ok with you, we'd love to have Seraphina as a post pal, I know my daughter Jessica would love picking things out for her! We'll drop you a line on Monday, but our thoughts are with you all over the weekend. Lucy xLuluandJessiehttps://www.blogger.com/profile/14528860389728226221noreply@blogger.comtag:blogger.com,1999:blog-8669889792701619840.post-61219180289637272232011-10-29T08:30:53.309-07:002011-10-29T08:30:53.309-07:00My heart and prayers go out to you greatly. I'...My heart and prayers go out to you greatly. I'm not the most active among Post Pals anymore (pillow case designer here) but I keep up to date with Seraphina and this blog because it truly touches my heart that you can be so honest. It may not feel like it all the time, but you're very strong. You and Seraphina are very inspiring people, I pray God bless you and that you continue to touch peoples lives. <br />Much loveJazhttps://www.blogger.com/profile/11608985695065397029noreply@blogger.com